Working Lettie Hard

Today started early for Lettie. We had speech at 8am and worked on some cognitive stuff. We then had OT and PT. During PT we discovered that her left tibia( a bone in her lower leg) is longer than the right by a few centimeters. They are going to make her a new brace anyway to help support her knee more during standing. We had more speech, PT, OT and music therapy this afternoon. I'm a little concerned because when she napped this afternoon every time she woke up she had that "look" in her eyes like she was going to have a seizure. I've prayed so much today that God will not allow the seizures to return. Unfortunately, she vomited tonight after they gave her meds and started her night feed with her NG tube. This poor child can't seem to get a break. I have emailed our dietician at Vandy cause we have now vomited twice here since Sat. and we never had these issues before so I'm thinking something is off with the amount of formula she's getting. She was a little more alert today, but as we worked in therapy I see how far we have to go to just get back to our pre-surgery baseline. This surgery has been very difficult for us! I would've never done this to her if I could've imagined a few of these things happening, much less, all the complications she's been through. The neuro team came in today and said they saw some abnormal spiking on the left side temporal lobe. This isn't good, it's actually pretty bad. This means we could now start having seizures that come from the left side. If this happens, the surgery was a total waste and we've done nothing more than take the child we had and made her life even more difficult than it was. Please pray the seizures will not return and she will make some huge gains in therapy. This is a slow process, I know, I'm living it out with her but I really need our God to give this child some peace and hope for her future to get better. Looking for better days soon.