A better day!

Don't you just get excited hearing the title. Each day is getting a little better. We're definitely taking it slow but I'll take a better day over a bad day, any day! Lettie got a pretty purple temporary brace made for her left leg to help support her more during standing. She ate her pureed foods well and Hallelujah, she drank from her bottle better than she's done since surgery! Praise God for this huge step for us. She drank one ounce at lunch and then drank two ounces for her snack. That may not sound like a lot of liquid, but to us this is big! She latched on pretty good to the bottle but did get distracted very easily and zoned out once or twice but we accomplished our goal to finish at least one ounce. We are still keeping the NG tube for now in case she stops drinking like she did last time and for her meds. We haven't attempted the food with meds yet since we put the NG tube back. A friend sent me some Sweet 10 sugar substitute liquid to try to mix with Lettie's food and meds to help with the bitterness of the meds. I plan on trying it soon. Honestly, I'm a little nervous to try it too soon cause the feeding seems to be going so good right now I don't want to mess it up. We'll get there though. One day at a time. God is in total control of this and I need to realize that and quit trying to make it go the way I want it to go. It's funny, a really good friend of mine helped me realize today that my plans for Lettie may not be the same plans God has for her so I just need to trust in God like I would want Jack,Coop, and Lettie to trust in me as their mother. I will make the best decision possible for my children and God will do the same for us, just way better than I ever could.