Rehab not starting off well

Well, first of all I hope most of you enjoyed my recent choice of song for the blog...Rehab. It pretty much describes my and I'm sure Lettie's feelings about rehab. Unfortunately, we haven't started off on the best foot for rehab. She isn't eating or drinking well at all. We have struggled all day with feeding which then leads to difficulty getting her meds in her. We have hit obstacle #1 in Atlanta. I prayed so hard that this would start better than Vandy did, but no luck yet. She has one more shot tomorrow to do better with her eating and if she doesn't succeed they're putting the NG tube back in Sunday! She was very sedated this morning as well and the neuro nurse practitioner thought she may be having silent seizures so she ordered an EEG. We did a 30min. EEG, not too bad, and should get the results in a couple of days. They call this "baby bootcamp" and I agree. We went non-stop today from 8-4. She got a break for lunch and 1 hour between OT and PT this afternoon. I'm not complaining cause I want to push her to get better and realize we're kind of working on a time frame of sooner the better. I'm sure you can tell from the last two posts that I'm really down and I can be totally transparent in these posts cause I don't really have to face people one on one. It really helps me to get out my feelings though, so thank you for reading. Just pray for improvement soon. I thought this would go better than it has and maybe it will tomorrow. I continue to read Psalm 91 over Lettie each night and I've got to let go of this fear....that's what's bringing me down, I know. It's so hard to push out those human fears for your child. Mark is here for the weekend so that helps. Maybe she'll wake up tomorrow and eat like a horse and less like a My Little Pony(you know since they don't eat food at all)! Gotta throw in some humor to distract me! Gotta get some sleep. Bootcamp starts at 8:30 tomorrow!