Wednesday, August 4, 2010

Self-removal of NG tube

Well Lettie's doctors told us this morning we could pull her NG if we wanted to but I didn't just in case we needed it for meds. We just started putting all her meds in her food yesterday and I wanted to keep it as a security blanket in case we needed it, but Lettie had other intentions. We sat down for music & OT group this morning and she pulled most of it out herself and started crying, then coughed one good time and out it came. So the tube is gone and let's pray we continue to get her meds in her food so we won't have to replace it ....again. She's done well today so far and got a new vest this morning called a Benix. It's a neoprene vest that we velcro on her. It has aluminum bars along the sides & back to help give her muscles input to improve her sitting balance. I'll post of pic of her later today in it so you can see our new lilac scuba suit, it's actually kind of cute, but can make her really hot so we have to watch her temperature closely. She should be fine unless we go outside in which we would take it off. It stay so cold in the hospital we wear jackets and pants most days so Lettie should be fine. Our case manager told us yesterday we should be here two more weeks, not too bad. Don't guess I should change my license to Georgia just yet, huh?!

14 comments:

  1. Well, I guess Lettie was pretty tired of that tube. I'm glad things are improving daily. We are still here & praying for Lettie & all of you. LeaAnne

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  2. Lettie taking her rehab into her own hands, way to go girl. Praying that everything keeps improving. Hang strong and God will have you all Tennessee bound before you know it.

    Size :)

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  3. O this post makes me smile! It is just amazing to see how far she has come! God is soo good. Praying daily for complete healing! Go Lettie Go!

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  4. Keeping Moma on her toes....!

    Show them what you are made of Lettie!...

    glad she didn't fuss when you put on the Benix.

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  5. That child is amazing. This made me laugh out loud. She had her own plans. Always thinking and praying for all of you........

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  6. All of this is a part of God's Perfect Will for this whole family. Find strength in this path that God has placed all of you and the people around you on. Still praying ...He Can Do ALL THINGS...whatever we ASK AND BELIEVE IN JESUS NAME. Continue to Thank Him in Advance for What is to Come. Pam

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  7. Lettie obviously heard you say "Let's keep the NG just in case we need it for meds." & thought "We'll just see about that Mom!" ;-) What a praise that Lettie's much more alert now & improving w/therapy each day! We're praying & waiting in great anticipation to see her progress over the next couple of wks.Can't wait til the day you post Going home! It's coming soon just hang on Lettie,Summer, & Mark! Believing in God's provision,grace & healing for Lettie! Lisa C

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  8. This post had the most positive sound to it. I pray for you daily and can't wait to see your post each day. Lettie is showing everyone that she is taking some control and that's good ....be strong willed Lettie....! God Bless you each day with something new and exciting will be my prayer.

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  9. Well, we know how Lettie has her own opinion about things! I am so pleased that she is showing herself and not just being compliant. Express yourself, girl! The little woman has her own ideas! I hope I will get to see you at home in 2 or 3 weeks. I am so ready to see, play, and work with her!

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  10. WAY TO GO LETTIE!!!! Show 'em what a Tennessee girl is made of!!! You hurry and get out of there sweetie. We are all praying and pulling for you every day. We love you!!!

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  11. Go Lettie ........ What wonderful news.....She did'nt want that tube any more..... Thanks be to God.........Please post a picture of Lettie Bug....She makes my heart feel good....when progress is being made....... God has his hand on this baby... Good night....Tracy R. N.

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  12. lol!!! Little Lettie is ready to move on and get back home!! God Bless her!! Susie

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  13. this child is gorgeous. i will continue to pray for her. hope she gets to come home soon.

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  14. praying....Patti Brown, KNoxville

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