Discharge date is set

Well, our case manager told us this afternoon that we are looking at a discharge date of next Thursday. We would get to head home around 9 or 9:30 that morning. This is so bittersweet for me because I'm so anxious to get back home and readjust to that life I used to have, but a little scared to leave my 6 week sanctuary of a hospital setting. I have 24 hour protection here if something goes wrong or I need help. As crazy as it may sound, I have a feeling it's going to take me some time to adjust to being home. I'm already on an emotional rollercoaster here and I can only imagine it will be just the same at home for awhile ( guess I better not forget to take my lexapro, huh?!). Some good news is that our PT here thinks our stroller we have will work just fine and we won't need to order a kiddie kart like we've been using here. In other news, I have decided tonight that I'm DONE with the keto diet! I hate it with a passion and can longer force Lettie to eat this way. Now, I haven't been able to share this news with the doctors yet, but plan to in the morning. I talked to Mark tonight about this and he agrees. We struggle with every meal and have tried option after option and she doesn't like any of them and not only does the food not taste good to her but then we have to add her meds which make it worse. I've tried adding sweet 10 and she still won't take the food that well. We can't use flavors in the meds because that adds sugar, which you can't have on the diet. So my huge prayer request for tonight is that it will be easy to wean off this keto diet and that her seizures WON'T return once we wean off. Please dear God, don't let the seizures come back! We are prepared if they return and the keto was what was helping then we will have to put a G tube in and feed her that way. That is another surgery to put the tube in her stomach, but if we have to go back to the diet that will likely be the best option to get the food in her. Please understand that I am not making this decision on heated emotions from struggling tonight to get her food and meds in her. I have prayed to make this diet easier on Lettie and us and these last four weeks have not been easy at all and don't seem to be getting any better. I am not anti-keto, although I know it sounds that way, I'm just anti-keto with Lettie! This diet works for many people and has amazing results but I can no longer fight this battle feeding Lettie. We have four meals a day to get in her and she fights us with all of them . It takes two people to feed her and it's unrealistic to think that we will always have 4 hands available at home to feed her and I also have to take into consideration that I have two other kids at home that need attention as well. Pray that it will be easy to wean off the keto diet and that seizures will not return, EVER!