I realize it's been a long time since I've posted but life just gets so busy and I blogged last Tuesday but it was on the wrong blog address so my whole post went to the wrong blog address! I'll try to sum up how life has been going lately, other than just busy and non stop!
Jack is still not a huge fan of school, but he is tolerating homework better and doing well in class. He has had three spelling tests and made a "100" on each of them so that's a good start. His favorite part of the day though is still coming home and riding his scooter in the driveway.
Coop is still Coop. She is full of energy and attitude. School is going good for her and she hasn't been in trouble yet which is unbelievable and wonderful. Soccer is going better in that she didn't cry last week but doesn't really get near the ball either! It's kind of like watching Jack play just in Coop's body! She went to her first UT game with Mark on Saturday and loved it! When she got home she told me they had "pecans" at the game. I was confused of course and asked her again what she said and she said " You know those girls on the field with those pecans." I had to hide my face when I realized she meant batons! It was another funny Cooper moment. I love those moments!
Finally, to Lettie bug! She is still seizure free! It's ten weeks today and we're praying constantly we continue on that track. We had our follow up appointment with our neurosurgeon and neurologist this past Wednesday and Thursday at Vanderbilt. Dr. Pearson, our surgeon, was pleased with how Lettie's incision looked. She has a small knot on the right side of her head that we noticed a couple of weeks ago and thankfully Dr. Pearson said it is a clamp that is holding her skull together. She actually has four more along the right side of her head. He was glad the tone on her left side wasn't rigid but did say he thinks she will have more of a helper hand type of recovery on her left side. He did say that he would expect some more movement to return in the future. We continue to pray for functional movement to return on that left side because Lettie still doesn't have any in her arm or leg. Dr. Paolicchi, our neurologist, was pleased as well that we have been seizure free but Lettie's follow up EEG which was done last Wednesday didn't show great results. She has abnormal spiking on the left side of her brain, her one and only good side, that shouldn't be there. The spiking is located in the parietal and frontal lobe and the EEG showed spiking specific to her speech regions. This would explain why she is having difficulty with things like repetition. We work so hard on "Ma,ma, ma, ma" and that explains why she can't repeat it to us. Dr. Paolicchi decided, from what she saw on the EEG report, to keep Lettie on all the same meds because seizures can easily return with the spiking she is having. Lettie didn't have good reflexive responses on her left foot either which concerned Dr. Paolicchi as well. Time will tell how it all turns out. We will continue to pray fervently that God will miraculously heal her in His time.
As you probably would expect, these weren't the results we had prayed for but as we have learned God has a plan and it's not always the same as ours. We continue to praise Him for stopping the seizures and we will continue to ask Him to heal our Lettie bug! We love her so much! I look forward to posting on a more regular basis. Thank you to those who keep us on their prayer lists.
So glad Lettie is still seizure free! I am continuing to pray that Lettie gets full movement back on her left side. You all remain in my prayers.
ReplyDeleteValerie Allen
I am still praying for Lettie's miracle. I am so thankful that God is protecting her from more seizures. I am so sorry you did not get the results you were praying for. Thank you for sharing you faith in God with all of us. I will continue to pray for your family. Lettie is such a special little girl. Your family is such a blessing!
ReplyDeleteJesus I Trust in you! Karen Carlson
Thank You so much for the update....I will continue to lift you all in prayer...Patti Brown, Knoxville
ReplyDeleteStill praying for Lettie's miracle! We love all of you!
ReplyDeleteLeaAnne Dollar
Thanks so much for the update!! Your sister in law sent out a group update on Letties Facebook page a few weeks back, so we knew she was still seizure free and Im so so happy to hear that continues. Continuing to pray that Lettie has been set free from seizures. The enemy will use that EEG to plant seeds of fear and doubt in your mind. Hold fast to the unseen.. the inner workings our precious Lord is working in Lettie's brain that no scan could ever pick up. But, I know that is still news that brought on pain and I will pray that your hearts are consumed with peace and that the Lord brings equal healing to the hurt in yalls hearts. I know this is going to come as a shock to you : ) but Im going to share Spurgeon's Morning and Evening for today.. It is so unbelievably perfect for you guys and I hope it spurs hope in your hearts...
ReplyDelete("And He said, "Go again," Seven times."
1 Kings 18:43 - Success is certain when the Lord has promised it. Although you may have pleaded month after month without evidence of response, it is not possible that the Lord should be deaf when His people are serious about A MATTER THAT CONCERNS HIS GLORY. The prophet on the top of Carmel continues to wrestle with God and never for a moment gave way to the fear that he would not be suited for Jehovah's courts. Six times the servant returned, but on each occassion no word was spoken but "Go again." We must not dream of unbelief but hold to our faith even to seventy times seven. faith sends expectant hope to look from Carmels peak, and if nothing is seen, she sends again AND AGAIN. So far from being crusHED by repeated disappointment, faith is quickened to plead more fervently with her God. She is humbled but not crushed. Her groans are deeper, and her sighings more vehement, but she never relaxed her hold or stays her hand. It would be more agreeable to flesh and blood to have a speedy answer, but believing souls have learned to be submissive and to find it good to wait for as well as upon the Lord. Delayed answers often set the heart searching itself and so lead to contrition and spiritual reformation: Deadly blows are then struck at our corruption, and the sinful images are cleansed. The great danger is that men should faint and miss the blessing. reader, do not fall into that sin, but continue to watch and pray. At last the little cloud was seen, the sure forerunner of torrents of rain; and even so with you, the token for good will surely be given, and you will rise as a prevailing prince to enjoy the mercy you have sought. Elijah was a man with passions just like us : His power with God did not lie in his own merits. If his believing prayer availed so much, why not yours? Plead the precious blood with unceasing persistence, and it will be with you according to your desire. ) I will continue to stay with you in belief watching and waiting for Lettie's healing one precious victory at a time.
Summer and Mark,
ReplyDeleteI continue to pray for you and Lettie. I'm so happy that Lettie has been seizure-free for such an extended period of time. I pray that continues. I also pray that you will be able to hear her say "momma" soon and that she will have increased movement and strength in her left side. I pray that you and Mark will continue to be as strong as you have been thus far.
Laura P.