We are currently on week 6 of our new med, Lamictal and seizures continue...and actually seem to have gotten more aggressive since our visit in December. We return to Vandy in March and will do another EEG and see what it says. As far as development, nothing really new. She still doesn't talk or crawl or walk and can only sit up on her own for about 20 minutes. She can't really chew like a normal child her age, mostly we mash up food for her like mac n cheese or spaghetti and she still drinks from a bottle. She has some movement from her left shoulder and elbow but nothing functional and doesn't really move her left leg much at all. She is however getting tall and HEAVY! I know this very well because I am her current and full time transportation source everywhere. My back and neck have informed me of her recent growth changes! She is such a sweet baby though and we love her so much. She absolutely adores Jack! She lights up when he kisses and hugs on her. Gotta be thankful for the sweet moments with her.
By the way, we have also re-inherited our old house recently! The family that was supposed to buy it has now moved to a new state and new job so if anyone is interested in a home in West Knoxville let us know! Just another thing to add to the list of unfortunate events in our lives right now! Have I mentioned already how crummy things are right now!
geez, Not the post I was hoping for from you guys...I can only imagine how many times you have heard it (and from me included), but hear it again...God knew two really good parents for Lettie, parents that could provide for her physically, emotionally, financially, and siblings that could love her like no one else on this earth could, and he put her right there in your family where she belongs! You may not have been prepared for it, but he will sustain you,,...in the meantime I will pray for a little relief from the floods. Your Christmas pictures are beautiful!
ReplyDeleteSummer, I continue to pray for Lettie, and you and Mark and the kids. You are an inspiration to many people. Keep the faith!
ReplyDeleteFaith is being sure of what we hope for and certain of what we do not see. -- Hebrews 11:1
Preston
Summer- we never stop praying for Colette and all of you. It's ok to be angry. You have had amazing faith through all of this. We love you guys- LeaAnne
ReplyDeleteI totally appreciate your honesty in saying it is crummy. You have to be real and not hide behind the christinesse terms sometimes. I will be praying more specifically for your family. The pictures Tracie took are amazing I saw them on her page on FB. She is a sweet sweet gal. Love her.
ReplyDeleteSummer,
ReplyDeleteI am so glad to see your update, we have thought about your family often over the Holidays. I can totally relate to the word CRUMMY and the anger just being a feeling that comsumes you at times (especially in those moments when you are alone and don't have to hold it all together) We pray for Lettie and the strength of your family daily. And what a BEAUTIFUL family it is. I was showing Emma Rhae the picturs and she said Is Lettie not so little anymore? So glad it looks like despite the cards you have been handed you all had a wonderful holiday!
Hey Summer- just was sitting here thinking about you guys and checked into your blog to find you had posted. Thank you for the update. My heart aches for you... and I know not at all what to say...
ReplyDeleteThank you for your honest post PRAYING FOR YOU GUYS! So sorry about the house thing too.
Thinking of you guys and praying as well
ps - It doesn't say my name in the post above... It's Tracie Ancelet.
ReplyDeleteSummer: I so appreciate your honesty in your posts. As christians its ok to say that we feel mad and upset. So many believers feel they can only say what others might want to hear. Given my own problems I talk with God several times a day and get mad. But he understands our hearts and I believe he appreciates our truthfulness. I think and pray for your family often. Much love adn prayers for your baby.
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